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Publications

Research, writing, and ideas shaped by lived experience.

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Turning Lived Experience Into Better Care

Authors: Airia S. Papadopoulos, Katherine D. Preftes, Melissa Destrampe, Maya Singh, Ariana Buterbaugh, Pablo Rodríguez, Dharma Cortes, Anna Cano Morales, Allison Bryant, Lisa Marceau

This study explores the experiences of Latina mothers during pregnancy and postpartum, highlighting their perspectives and recommendations to inform tools that support self-care and self-advocacy.

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Understanding Power: An Imperative for Human Services

Editors: Elaine Pinderhughes, Vanessa Jackson, and Patricia A. Romney

Chapter 11, “Cash & Counseling: Empowering Elders and People with Disabilities to Make Personal Care Decisions” co-authored by Erin McGaffigan, Ph.D., and Kevin J. Mahoney, Ph.D. explores how Cash and Counseling programs empower elders and people with disabilities to make personal care decisions.

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Describes the influence and importance of support brokers in self-direction in this Professional Case Management Journal article.

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Exploring her personal challenges in advocating for her grandmother while navigating the nursing home system in Massachusetts in this 2006 contribution to the Journal of American Geriatrics Society's Clinical Trials and Tribulations column.

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Ethics and Integrity in Research with Older People and Service Users: Moving Beyond the Rhetoric

Edited by Roger O'Sullivan

This book examines how research can better respect lived experience, promote meaningful participation, and uphold ethical practice when working with older people and service users.

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Chapter 1, "Theory and Practice of User Involved Research" co-authored by Erin McGaffigan, Dani Skenadore Foster, Sophia Webber, and Missy Destrampe. Explores how the application of user involvement in the design and implementation of research has progressed through various frameworks and is an increasingly recognized and expected as a key element of ethical research methodologies.

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The Oxford Handbook of Social Work in Heath and Aging, Second Edition

Authors: Daniel B. Kaplan (Editor), Barbara Berkman (Editor)

Chapter 8, "Approaches to Empowering Individuals and Communities," co-authored by Erin McGaffigan, Ph.D., Kevin J. Mahoney, Ph.D., Mark Sciegaj, Karen Zgoda, and Ellen Mahoney addresses how empowering individuals through participant-directed approaches is becoming more common at the micro, mezzo, and macro levels.

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Addressing the importance of including the "special populations" of individuals with disabilities and the elderly in disaster planning and response.

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While focusing on the experiences of Cash & Counseling states, this research provided a strong foundation for understanding and implementing meaningful and effective engagement practices in the design and improvement of a broad range of public programs and policies.

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