Collective Insight

This paper presents thoughts and experiences related to barriers to compensating patient partners with the goal of helping individuals identify and find solutions to these obstacles

PCORI has developed six foundational expectations — building blocks for meaningful, effective and sustainable engagement with patients, communities and other partners in research.

This plain-language guide explains how individuals with intellectual and developmental disabilities understand disability and self-advocacy, to inform your new understanding. The guide also provides checklists and handouts for taking active roles in inclusion and self-advocacy allyship.

This plain-language guide how to make board meetings and committees inclusive, supportive, and inviting spaces for people with different learning styles. It offers tips and suggestions for facilitation as well as recommended language.

Consolidated information from a variety of sources (listed at the end of this document) regarding how to communicate effectively with older adults in a range of circumstances.

This resource offers considerations and tips to support Virtual Meeting Accessibility

This tool from Building Research Initiatives by Developing Group Effort offers strategies for making your surveys more aphasia-friendly, including step-by-step instructions on how to embed videos, add closed captioning, and create answer options.

To help applicants incorporate engagement into their study proposal and budget, this document reviews budgetary items associated with engagement within a research study.

PCORI’s Compensation Framework provides guidance for establishing fair compensation levels for patients, caregivers, and organizations.

This website provides tips for writing a grant proposal as well as offers samples.

This resource covers the basics of proposal writing and best practices, including follow-up etiquette. It also provides hands-on exercises.

This presentation from the National Organization for Rare Disorder, Rare Disease, and Orphan Product Breakthrough Summit, offers a step-by-step process for evaluating your funding proposal and optimizing it to include stakeholder engagement.