Measurement Matters is a project funded by the Patient-Centered Outcomes Research Institute (PCORI) (SOE-2022C2-28570). The purpose of this project is to create and test a new survey to measure research engagement, which we are referring to as the Patient Centered Outcome Research Engagement Measure (PCOR-EM) survey.

We mean the meaningful involvement and partnership of patients and stakeholders throughout the research process, from planning and conducting research to disseminating research results.[1]

[1] The PCORI Engagement Rubric. PCORI (Patient-Centered Outcomes Research Institute) website. http://www.pcori.org/sites/default/files/Engagement-Rubric.pdf. Published February 4, 2014. Updated June 6, 2016. Accessed January 19, 2024.

We mean those who engage in your research process who have personal or community experience relevant to your research topic.

Our research team, with guidance from our Steering Committee and Technical Advisors, conducted a literature scan, consensus methods, focus groups, and cognitive testing to inform our development of the PCOR-EM. You can find out more about each of these activities and their findings at Measurement Matters Project | Collective Insight.

Pilot testing is a method used after you develop a survey to help improve a survey. More specifically, pilot testing helps us make the PCOR-EM is valid (it accurately measures what we intend it to) and reliable (the survey is consistent from one person to the next). Our pilot testing results will guide our improvements of the PCOR-EM so it can effectively measure meaningful collaboration in research.

The purpose of pilot testing is to improve the measurement of engagement. This survey has not yet been proven to effectively measure engagement. Your participation in this study will help us improve this survey so one day we can make it broadly available to measure engagement and share results.